Henry and this is my story.(Meniere Success Story)

I live near Seattle, Washington.  I am a 61 year-old male.  For the past 9 years I have been a Meniere’s Disease sufferer – my first Meniere’s Disease episode occurred when I was 52.  For the first seven years, I experienced tolerable, occasional vertigo attacks approximately two or three times a year.  During the next (eighth) year, my attacks became frequent, severe and increasingly intolerable.  Now, during more than one full year (the ninth), I have experienced nearly total, miraculous relief.  I am posting my story in the hope that it will help someone.  If even one person in the world gets any relief from their Meniere’s Disease , it will be a good thing.  My name is Henry and this is my story.


The Beginning 
It was a beautiful early October day in 2003.  I went to bed that night feeling like I had the beginnings of a cold.  Nothing drastic, just that first “uh-oh” feeling that sometimes becomes a cold and other times not.  When I woke up the next day, my right ear felt completely plugged.  I couldn’t clear it by holding my nose and blowing and could not use that ear to talk on the phone.  Not only that, for the first time in my life I had a persistent, loud ringing in the ear and my balance was off.  I wasn’t bumping into walls, or experiencing vertigo, but I felt strangely unsure of my footing.  I should also mention that I was an actively competing triathlete at the time and in pretty good overall physical health.  At that point in my life I was 52 and I had been operating under the assumption that if you ate right, exercised vigorously and got enough sleep you had nothing to worry about.  Little did I know.

For the first couple of days, I started off assuming I had nothing more than an “ear cold” that would soon pass.  But then after a few days of no improvement, I started searching the internet and became increasingly alarmed that I had suffered a Sudden Hearing Loss (SHL) condition.  Several articles I read recommended immediate injection of a steroid directly into the affected ear.  The articles stressed that it was critical to get treatment within a relatively short period (like 48 hours, as I recall).   Even though about four days had now passed, I made an appointment with a local Ear Nose and Throat (ENT) specialist.  I relayed my findings to her and she agreed to try the steroid injections.

The injections were performed via a needle inserted through the ear drum.  Not very pleasant.  I don’t recall how many injections were done, but it was at least several over a few days period.  The injections had no perceivable effect.  By now about a week-plus had passed and I was definitely no better.  In fact, I had a perpetual feeling of major fullness in the ear and I was still unable to use the right ear for talking on the phone.  I had a terrible time understanding people talking to me in a group.  When you go from good hearing to half hearing, it is a definite mental adjustment.  I was quite worried that I had indeed suffered a permanent loss of hearing in my right ear.  I remember having thoughts around that time that if this were to happen to the other ear, I would be totally deaf.  Not very uplifting thinking.

After administering several steroid injections, the ENT prescribed oral prednisone at a fairly high dosage as a follow-on treatment.  I don’t recall the dosage exactly, but it was quite high.  I ended up feeling “wired” and had difficulty sleeping.

My recollection of the timing is somewhat fuzzy, but several weeks after my initial SHL experience I had my introduction to vertigo.   I woke up one night and I literally thought I was dying.  The room was spinning in the most frightening manner.  I staggered out of bed and immediately crashed to the floor.  Somehow I crawled on all fours to the bathroom and violently threw up several times.  I had never experienced vertigo before and I had not the slightest idea what was happening to me.  My girlfriend/future wife was with me that night and she was able to get me into the car to drive me to the emergency room.  I was administered an anti-histamine, kept there for several hours, then released.  By now the vertigo had passed.  I returned home, went back to sleep and woke up feeling wiped out, but basically OK.  Welcome to Meniere’s Disease.

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